Va2k

Hey I was just told yesterday that I have Lymphoma, B-Cell cancer. Just wondering with all the webmasters around here if anyone has had this or have it or know anyone with it? The survival rate don't look promising 5 years??? I have to go have surgery Wed the 10th they are going to cut one of the nod's and dissect it more to find the best treatment and put a tube into my chest! Yuck

It still sinking in I guess My eyes are killing me from reading up on it via webmd and other sites. Kind of freaky! So just wanted to know how others that have it had it and are dealing with this?

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junction

My dad beat NHL in the 2000. He made it almost 7 years, then ended up with lung / brain cancer. Killed him on September 7th, 2007.

Va2k

Holy shit sorry to hear that, did the lymphoma cause the other cancer?

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_Richard_

my friend got it at 24 or something.. did the whole nine yards and survived just fine

survival rates are just statistics.. believe you will be fine, do what is necessary to help it along and your statistic is higher

Best of luck.

Due

My exwife had lymphoma T-cells cancer, she survived barely.
It's a really hard treatment for your body, not sure about the difference between B and T cells though but chemotherapy is pretty bad :-(

I would advise that you tell your friends and family about what's going to happen and that you are going to need their help most likely, people that is nit sure what you are going through is more likely to stay away because they are afraid of doing something wrong.


Good luck!

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Va2k

Wow Due and Rich Thanks gives me hope, family and friends know now, but as I said don't think it has really set it. The whole cancer word is scary as hell. It does how ever look like I have stage 1 worse case is early stage 2 the doc said but they wont know till after the surgery! I have 3 things in my life that I know I will get through it and the first and most important are my two sons. Then my mom and then my family and friends!

so reason I posted here asking for anyone that had it or known someone that had it because I'm going in fucking sane reading shit on line about it.. Hell I use to be a paramedic/firefighter but most of the words they use goes way over my head! Got a killer headache right now prolly from reading and the stress! I knew something was real wrong when the doctors office called Wed said the Doctor wanted to see me asap.. YUCK!@#!$ The things that went through my mind before knowing and now after is scary.
Thanks guys.

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SmokeyTheBear

I wouldn't go reading up on it much it will just scare you, then again you are asking on gfy so you must have tough skin.

I had a friend die of it recently so i will tell you what i know. If they catch it early alot of the time they can send it into remission with chemo or other drugs, it will often come back years later, some people have several bouts.

Look dont want to scare you so if so don't read further. My friend was normal guy, normal health, had a lump on neck ( lymph node ), doctor said it was nothing, went back , said it was nothing again , went for a second opinion they checked for lymphoma and sure enough it was. Cancer spread quick, within a month. 2 months he was bed-riden , 4 months he was gone. The lymphoma will often spread through the lymph system to all your organs.

Nobody wants to die and least of all know the timetable. Focus on staying happy and keeping your family informed and aware of how you feel. If it progresses badly you will get sicker and sicker until eventually they put you on morphine , once they do you wont be able to think correctly or tell your loved ones anything meaningfull, so do that part now.

Just out of curiosity , were you getting treated for hepititas before this happened ?

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baddog

Good luck man. That is why I don't go to doctors.

Va2k

Thanks smokey its only under my left clavicle and the ct scan did not find any others in my chest or abs or pelvic and no to hepatitis or HIV thank god, them test has always came back NEG I went to my doc as soon as I felt the lump which was 2 weeks ago he didn't like it and sent me to a specialist which was last Friday, he did a bi-op and this Friday I found the news! Now I have to go for surgery this wed so they can find out more about it and give me the right treatment. As for thick skin Na and yea I just got tired of looking at everything goggle threw at me and fig this is a huge board with a lot of people and out of the people here someone has to have had it or known someone reason I post it.
Thanks for the info bud.. you have always been top notch.

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DaddyHalbucks

I'm very sorry to hear that. My suggestion is to also look into natural medicine treatments.

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Va2k

Thanks BD but glad I went and hope it's early enough so I can at least live 8 more years which my 10 year old would be 18 and my 14 will be 24 they at least will have a better chance of living a normal life if they stay with me and not with their mother or my family! I hope to be around that long at least! *shrugs*

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comeplay

My girlfriends brother-in-law just passed away on 2-22-10 from Hodgkin's lymphoma but I am not sure how that compares to your specific type. He was diagnosed about 3 years ago and they tried a number of treatments which seemed to help for a while until last August it came back and he entered the VCU Massey Cancer Center in Richmond for a bone marrow transplant they claim his cancer was completely taken care of but while his immune system was recovering his kidneys failed and soon a bunch of other organs were affected by the time the kidneys recovered. He died cancer free they claim and amazingly was strong enough to never need any life support just heavy pain meds and saline in the end. He was a very strong man who had worked hard all his life so this may not be the norm but he was barely into his 40's and was in the same situation as you as far as two young kids 7 and 10.

I wish you so much good luck with your recovery and hope this doesn't taint your willingness to fight and to even further your research efforts. I live on almost the other side of Virginia from you but if you do have any extended hospital stays come up be sure to let us know if you want some visitors to help keep your spirits up!

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Va2k

Thanks friend! And I have the NHL non Hodgkin version from what they tell me!

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SmokeyTheBear

the reason i asked about the hep was because 3 people i know got lymphoma shortly after being treated for hep-b. I believe they use interfuron to treat hep and lymphoma , so just curious. I think what happens is when they give you chemo the cancer will either remit or will try and hide in other organs and spread. You are fairly young i would assume older people probably get the more severe cases.

I know a lady who is perfectly healthy and fine who had it several years ago ( 7-8 ) , so there is certainly hope. But if it goes downhill fast make sure you put your family top priority now, remember that if you do get sick sick , you will be medicated and not thinking clearly. Write some letters now please just in case.

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Va2k

That helps, and yea im only 37

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kaori

I had a lymphoma scare - a bunch of clavicle nodes and neck nodes were/are swollen.
It was incredibly stressful waiting for the biopsy report - which came back negative.
But is still stressful, as the detection failure rate of fine needle biopsy is still quite high.

During my research, I found a bunch of lymphoma support forums... (forums.lymphoma.com) that were handy. Hope you beat it!

baddog

Yeah, having younger kids makes it tough. Have you gotten a second opinion yet? I know we are not close, but I am a dad, so if you ever need to talk, feel free to hit me up.

junction

That's unknown. My Fathers side of the family all die from cancer between 50 and 60. Myself, and my 2 kids are the last living from my fathers side. They think that we just have a genetic flaw that causes cancer in us.

Va2k

Thanks bud that means so much coming from you sir! I have always thought of you as a good guy! As for 2nd opinion That is what this surgery will be when they remove one of the nods and do another bi-op on it.


kaori Thanks for the forum going to check it out now bud

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Va2k

Oh man that sucks

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fatfoo

I didn't have it.

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docputer

Good organization for folks with cancer is Planet Cancer. They offer support and information. Livestrong is also a good place for support.

CaptainHowdy

My toughts exactly...

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Farang

Damn, sorry to hear, man. May I ask what symptoms did you have, that made you go to hospital and get checked? Thanks

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Ayla_SquareTurtle

I wish you luck. Please be aggressive with your doctors in perusing all avenues you want to explore.

That's what killed my grandmother. Consider yourself lucky they found it. They spent nearly a year running pointless tests and telling my grandmother that it was "just her stomach" before finally diagnosing her less than 2 weeks before her death. By then there was just nothing they could do.

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Phoenix

ugh sorry to hear that man...keep your spirits up

cancer is a scary thing

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Great addition to the thread fucking moron.

selena

My ex had Hodgkin's. He was diagnosed with it around the time our son was 4. The boy is soon to be 24, and his father is still going strong. He did have a tough time with the treatments, but they saved his life.

I know it has to be terrifying, especially if you have young children that you are raising. Just try to stay focused on the positive, and enjoy things that make you laugh. Laughter certainly won't hurt, and it may even help.

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izzynew

My father was diagnosed with non-hodgkins lymphoma in 1993. They took quite a long time to find it out and he was very ill by the time the diagnosis came through.
He had an operation and then intensive chemo. The chemo was bad but it worked (knock on wood).
He is still alive today. Not the strongest of men as he never put back all the weight and muscle degeneration after the chemo. (He's a coeliac, which doesn't help and coeliac syndrome is suspected to be related to non-hodgkins lymphoma sometimes).
I worry every time I see him that it'll come back, but it's been 17 years now, so...

Anyway, good luck man.
The chemo is hard, but it does beat it in many cases.

Va2k

My symptons were: ( at the time I knew something was wrong just didnt know what) but my symptoms were Tired needed to take at min 2 naps a day 2 to 3 hours after waking up from a good night sleep, then around 5pm needed my 2nd Joint pains in my fingers and legs, weak all over and my skin and head itched all the time! Hell I even went out and bought head and shoulders thinking that might helped.

But the reason I went to the doc's was I laid down a different way then normal and my hand for some reason went to my clavicle area on my left side and found a lump about the size of a golf ball and a baby one long story short it scared me enough that Monday I called for an apt and before I got there I found another one then the doc found another one four in total in the same place! Thank god he ran test and made an apt for the specialist

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Va2k

Thanks Phoenix selena and izzynew for the kind words and your experience with this damn thing! I did go to that support board that kaori and they all basically said what Smokey said STAY the fuck away from goggle and reading the old info that is out there! So things are looking better but still scared shitless, this has been a eye opener for sure!

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DaddyHalbucks

I know someone with NHL. He's been a real prick the last few years.

Anyway, I hope you don't fall into that trap. Do anything you can to be thankful and positive. It will payoff for you.

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Va2k

Hell no I woke up even though its only been a few days but I woke up and have a new found of life. I want to do more things with my kids and family and I want to meet new friends! I also want to be a better person to everyone. I know this is only words but this has been a wake up call! When you read you may only have 5 years or less to live that scares the holy hell out of you, well it did me.

This has made me realize all the work I have done, all the peoples lives I saved when I was in the fire dept and everything I have nothing to this day to leave my two kids if I should die tonight! They would be fucked! But My hand to my kids and my own life this is going to change and change fast! I will have better savings and life insurance. Thank god I have health insurance.

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