Do you have a chronic disease or know someone that does? - Page 2 - GoFuckYourself.com

SilentKnight · 07-28-2013, 03:40 PM

baddog - just sittin' here talking with my wife in the background over this thread.

Something she says you and GG should be aware of and take into consideration:

She says that sometimes vitamin supplements such as the B7 can mask/manipulate the effects of RA while the internal joint damage is still being done. Also, some medications (especially T & F blockers/biologic drugs and DMARDS such as methotrexate) will give a false low reading for some vitamins and minerals.

Basically, even though the B7 and B12 supplements are giving her radical improvement, don't entirely rule out that the RA may still be present. Stay on top of her progress and monitor things very closely (as I'm sure you both will anyways).

But that said - I really hope its simply just the B7 deficiency and what she's doing will totally eradicate the symptoms.

goodgirl · 07-28-2013, 04:02 PM

Quote:

Originally Posted by SilentKnight

baddog - just sittin' here talking with my wife in the background over this thread.

Something she says you and GG should be aware of and take into consideration:

She says that sometimes vitamin supplements such as the B7 can mask/manipulate the effects of RA while the internal joint damage is still being done. Also, some medications (especially T & F blockers/biologic drugs and DMARDS such as methotrexate) will give a false low reading for some vitamins and minerals.

Basically, even though the B7 and B12 supplements are giving her radical improvement, don't entirely rule out that the RA may still be present. Stay on top of her progress and monitor things very closely (as I'm sure you both will anyways).

But that said - I really hope its simply just the B7 deficiency and what she's doing will totally eradicate the symptoms.

I understand what she is saying, my mother had severe Rheumatoid Arthritis and died of a complication called Felty's Syndrome. My older sister has damage from it and has done well with the treatments. I struggled more with similar symptoms plus many more and in 8 years of x-rays, MRI's and cat scans no damage other then in the neck was found. And the RA docs say RA does not hit the neck.

I had been found to have low vitamin D over a year ago and started treatment. They do know with biotinidase deficiency causes issues absorbing other B vitamins, fats, carbohydrates and proteins. I do not believe I have RA after this past week of improvement and seeing many different RA doctors, family doctor and neurologist.

I will be writing more as I find out more and my treatment changes. From symptoms that my mother, older sister, younger sister and myself. I believe RA and biotinidase runs in my family. I think my mom had both, my older sister has RA and younger has biotinidase. But that is just going by symptoms that were different between us.

SilentKnight · 07-28-2013, 04:19 PM

Quote:

Originally Posted by goodgirl

I understand what she is saying, my mother had severe Rheumatoid Arthritis and died of a complication called Felty's Syndrome. My older sister has damage from it and has done well with the treatments. I struggled more with similar symptoms plus many more and in 8 years of x-rays, MRI's and cat scans no damage other then in the neck was found. And the RA docs say RA does not hit the neck.

I had been found to have low vitamin D over a year ago and started treatment. They do know with biotinidase deficiency causes issues absorbing other B vitamins, fats, carbohydrates and proteins. I do not believe I have RA after this past week of improvement and seeing many different RA doctors, family doctor and neurologist.

I will be writing more as I find out more and my treatment changes. From symptoms that my mother, older sister, younger sister and myself. I believe RA and biotinidase runs in my family. I think my mom had both, my older sister has RA and younger has biotinidase. But that is just going by symptoms that were different between us.

Cathy's condition was originally diagnosed as childhood Still's Disease, which progressed to RA after the birth of our first daughter 19 years ago.

Like you, she's run the gamut of so many treatments over the years I've almost lost count. We're well up to $100k these days with the various infusions (she's on her third biologic medication when she begins with Remicade soon).

At the very least, I've passed along the info you and baddog have brought up (including all that I read in your RA blog)...and I'm encouraging her to talk with her rheumatologist about the possibilities of a B7 deficiency.

Every faint glimmer of hope can only be a good thing.

baddog · 07-28-2013, 04:33 PM

SK: Tanya's sister has tested positive and acted reluctant to even try because she did not want to mix meds; B7 will just piss out of you if you have too much. Look at the symptoms and you will see a ton of similarities. It can not hurt her to have the vitamins.

That being said, are you guys familiar with the Rheumatoid Patient Foundation? www.rheum4us.org

tical · 07-28-2013, 04:35 PM

made me think of a very interesting video i saw on b12 deficiency

it's pretty odd that getting thorough panels done (spectracell for instance) for vitamin / nutritional deficiencies is like pulling teeth

a shame today that most any illness or condition is essentially chalked up to a deficiency in pharmaceuticals

baddog · 07-28-2013, 04:37 PM

Quote:

Originally Posted by tical

made me think of a very interesting video i saw on b12 deficiency

it's pretty odd that getting thorough panels done (spectracell for instance) for vitamin / nutritional deficiencies is like pulling teeth

a shame today that most any illness or condition is essentially chalked up to a deficiency in pharmaceuticals

On Thursday we visited a naturopathic doctor; he has never dealt with a B7 deficiency before; as far as I am concerned that is a good thing because this guy will do whatever we ask so he can learn too.

SilentKnight · 07-28-2013, 04:43 PM

Quote:

Originally Posted by baddog

SK: Tanya's sister has tested positive and acted reluctant to even try because she did not want to mix meds; B7 will just piss out of you if you have too much. Look at the symptoms and you will see a ton of similarities. It can not hurt her to have the vitamins.

That being said, are you guys familiar with the Rheumatoid Patient Foundation? www.rheum4us.org

Rings a bell - I'm quite sure she's been on the rheum4us.org site. She spends a lot of time on various RA forums exchanging info with folks.

She'll talk it over with her specialist about the B7 and get his feedback on it. As well as a rheumatologist he's a leading RA researcher in Canada and Cathy respects his input on everything. He's been quite proactive with her treatments over the years.

baddog · 07-28-2013, 04:58 PM

Quote:

Originally Posted by SilentKnight

Rings a bell - I'm quite sure she's been on the rheum4us.org site. She spends a lot of time on various RA forums exchanging info with folks.

She'll talk it over with her specialist about the B7 and get his feedback on it. As well as a rheumatologist he's a leading RA researcher in Canada and Cathy respects his input on everything. He's been quite proactive with her treatments over the years.

GG's doc in Indiana (that diagnosed her) was pretty good that way. For instance, she knew that she felt better when she had B12 shots; even though the doc did not know WHY it helped he gave her the prescription. The doctors in CA have been less than cooperative. As someone that does not go to doctors on my own, observing this shit up close and personal had done nothing to make me think my anti-medicine policy is not a bad choice.

and who knows, maybe GG and Cathy know each other

SilentKnight · 07-28-2013, 05:19 PM

Quote:

Originally Posted by baddog

GG's doc in Indiana (that diagnosed her) was pretty good that way. For instance, she knew that she felt better when she had B12 shots; even though the doc did not know WHY it helped he gave her the prescription. The doctors in CA have been less than cooperative. As someone that does not go to doctors on my own, observing this shit up close and personal had done nothing to make me think my anti-medicine policy is not a bad choice.

and who knows, maybe GG and Cathy know each other

Well, I know Cathy wants to avoid getting too deeply involved with any naturopaths that have a self-serving agenda (prescribing stuff that either won't work, she doesn't need...or that will create more problems that it solves) - just to pad their own wallets.

I work with a guy who has a naturopath on speed-dial (guru - I call him) who sells him so many different 'snake oils' (my words) that he spends half his weekly pay on herbal pills, vitamin extracts, drops - and ends up with more chemical imbalances than you can imagine. Mentally and emotionally he's a wreck, but the naturopath has him wrapped around his finger - hell, he'd ingest cyanide if this guy told him it'd fix a hangnail.

We'll take it one step at a time. Getting tested for B7 deficiency will be first - followed by a consultation with her specialist (she sees him again in Sept).

goodgirl · 07-28-2013, 07:11 PM

I would try to just have a vitamin panel done and make sure it includes all B vitamins. They know D can be low with RA and the new doc said he had only one patient with a rare B6 deficiency and that patient had similar symptoms like mine.

baddog · 07-29-2013, 09:09 AM

Bump for the Monday crowd

seeric · 07-29-2013, 09:21 AM

I'm not going to get all conspiracy nut here, but I can tell you based on a few real world interactions with the medical system in the USA, that it's not about making people better.

People that are not sick don't pay you money if you're a medical business.

There is no $ in cures.

My significant other works in a naturopath clinic, and on a weekly, monthly, and yearly basis, they CURE diabetes. Not treat it with insulin to keep you coming back addicted to the insulin. They CURE it. Knock it out, it's gone, done! Never to deal with it again.

There are so many things wrong with our countries food, the marketing of that food, and the processing of that food, that I wouldn't know where to start. That coupled with the health care system creates the necessary catalyst for those companies in the medical space to stay rich, while you stay sick!

People need to stop believing the HYPE that your doctor cares about you, and that the system is designed to benefit you. It is not.

Get out there. Turn over your own rocks. Educate yourself like GG and BD did, and take your lives back.

I love reading stuff like this.

SilentKnight · 07-29-2013, 03:14 PM

Bump for the cause.

baddog · 07-29-2013, 05:17 PM

http://ireport.cnn.com/docs/DOC-1012971

Dirty D · 07-29-2013, 06:39 PM

Glad to read a positive and warm msg on GFY.

Give Tanya a hug for us.
Glad you guys are doing well. You both deserve it!

eroticsexxx · 07-29-2013, 09:17 PM

Quote:

Originally Posted by baddog

http://ireport.cnn.com/docs/DOC-1012971

Nice!

mikesinner · 07-30-2013, 01:45 AM

Won't be too long before a full genetic test can be done cheaply for everyone. By the time it comes around in 5-10 years they will have figured out what most genes do. They already know the function of a lot of them.

WarChild · 07-30-2013, 07:34 AM

Quote:

Originally Posted by seeric

My significant other works in a naturopath clinic, and on a weekly, monthly, and yearly basis, they CURE diabetes. Not treat it with insulin to keep you coming back addicted to the insulin. They CURE it. Knock it out, it's gone, done! Never to deal with it again.

Uhh, what? Addicted to Insulin? You realize normal healthy bodies produce Insulin, right? It's not like taking Oxy to manage pain or something. It's something your body needs.

So this naturopath clinic fixes the Pancreas and it starts producing Insulin again or they magically transform the body so blood sugar level doesn't matter? Excuse me for sounding doubtful but you're making a fantastic claim here.

rhon23 · 07-30-2013, 09:15 AM

I have a form of anemia due to low b12. I give myself injections once a month and will have to for the rest of my life. It's amazing what the lack of b12 does to your body and mind. The injections have changed my entire life.

baddog · 07-30-2013, 09:39 AM

Quote:

Originally Posted by rhon23

I have a form of anemia due to low b12. I give myself injections once a month and will have to for the rest of my life. It's amazing what the lack of b12 does to your body and mind. The injections have changed my entire life.

GG has been using B12 for several years . . . now that she has discovered her issue was B7, she plans on skipping B12 and see what it does for her.

I can't stress enough the importance of getting a full vitamin and mineral test done. Anyone that knows me knows my disdain for the medical profession, but I am getting a test done today, just to see what's up.

Imortyl Pussycat · 07-30-2013, 09:47 AM

this is amazing news, i'm so happy for Tanya and for you doll! I can't wait to see her and give her a big hug

rhon23 · 07-30-2013, 09:49 AM

Quote:

Originally Posted by seeric

I'm not going to get all conspiracy nut here, but I can tell you based on a few real world interactions with the medical system in the USA, that it's not about making people better.

People that are not sick don't pay you money if you're a medical business.

There is no $ in cures.

My significant other works in a naturopath clinic, and on a weekly, monthly, and yearly basis, they CURE diabetes. Not treat it with insulin to keep you coming back addicted to the insulin. They CURE it. Knock it out, it's gone, done! Never to deal with it again.

There are so many things wrong with our countries food, the marketing of that food, and the processing of that food, that I wouldn't know where to start. That coupled with the health care system creates the necessary catalyst for those companies in the medical space to stay rich, while you stay sick!

People need to stop believing the HYPE that your doctor cares about you, and that the system is designed to benefit you. It is not.

Get out there. Turn over your own rocks. Educate yourself like GG and BD did, and take your lives back.

I love reading stuff like this.

what type of diabetes. I myself, am a type 1 and do not sure a cure in any near future

media · 07-30-2013, 10:07 AM

Good for you both Lloyd! I read this when you initially posted it on FB.. I'm going to have my girl ask her doc for a vitamin/mineral test to see if her levels are out of wack.. the docs scratch their heads every time and say it's either Fibromyalgia or it's all in your head, or it's inter muscular pain, blah blah.. she's gone to multiple docs, spine experts, pain experts, MRI's.. no one can pinpoint shit, or their not willing to say what it could be for logistical reasons or politics of HMO/PPO's.. I'm sure people overlook the most basic of things to try and diagnose the most complicated of things, but fail miserably most of the time.. Glad Tanya is feeling better and enjoying life more

baddog · 07-30-2013, 10:45 AM

Quote:

Originally Posted by media

Good for you both Lloyd! I read this when you initially posted it on FB.. I'm going to have my girl ask her doc for a vitamin/mineral test to see if her levels are out of wack.. the docs scratch their heads every time and say it's either Fibromyalgia or it's all in your head, or it's inter muscular pain, blah blah.. she's gone to multiple docs, spine experts, pain experts, MRI's.. no one can pinpoint shit, or their not willing to say what it could be for logistical reasons or politics of HMO/PPO's.. I'm sure people overlook the most basic of things to try and diagnose the most complicated of things, but fail miserably most of the time.. Glad Tanya is feeling better and enjoying life more

Your girl's situation sounds exactly like what Tanya was dealing with; I suspect the misdiagnosis began when her mom and sister were diagnosed with it. Even if the tests said otherwise. If her doc won't give her the test, go somewhere else; the test is far too inexpensive to just blow off. Hell, if nothing else, have her start taking 50-60 mgs of Biotin a day; Tanya noticed the difference almost immediately.

In fact, she did not realize how much things had changed for her until she was going through some photos that were taken Sunday, the day after she started the Biotin.

Her eyes had extreme light sensitivity; every photo I have of her in the daylight, she is wearing shades. She did not notice that she no longer needed them.

Good luck and keep us posted.

TheSquealer · 08-05-2013, 03:28 PM

Quote:

Originally Posted by seeric

My significant other works in a naturopath clinic, and on a weekly, monthly, and yearly basis, they CURE diabetes. Not treat it with insulin to keep you coming back addicted to the insulin. They CURE it. Knock it out, it's gone, done! Never to deal with it again.

Was searching for someone's contact info and came across this. Ha! Wow. But then again, i can guess you're medical knowledge is probably on par with that of the "naturopath"

JFK · 08-05-2013, 03:34 PM

Quote:

Originally Posted by Dankasaur

Awesome story, and congrats GoodGirl.

baddog · 08-05-2013, 04:49 PM

Since there was a bump (or two) I might as well provide an update. GG has completely discontinued using any of the drugs she used to rely on daily. Has never felt better, is constantly amazed at what she can now do.

We are learning more, but I will tell you this, no matter what you were "diagnosed" with, you owe it to yourself to get a vitamin and mineral test done. If nothing else, start powering down B7, your body may not be getting it through normal means.

johnnyloadproductions · 08-05-2013, 07:40 PM

I suffered from rapid cycling manic depression, I believe it was partly induced from a very hard hit from a soft ball (gave me a concussion).
I went on lithium for 18 months, though I probably only needed for 6 or so, and was completely cured. It's been that way for 7 years now, no meds at all.

Lithium acts through several different channels and mechanisms, but after some reading I believe it reset my brain and I was fine after that.

I never ever want to experience what I did back then, hardly anyone can imagine how painful it got for me. The hardest part of psychotropic drugs is the lag of 1-4 weeks for effects to become apparent, if then.
The body is what moves you around but your mind is the ultimate governor and determine how and where you end up. That's why most homeless people are either very ill or crazy.

DraX · 08-06-2013, 05:49 AM

Great story and happy she's found a completely new road in life. She's worth it.

I think doctors are way too arrogant towards vitamines and supplements and I have seen it upfront a couple of times.

But I also believe doctors in the U.S. are more open for such means as treatment.

Good luck in life goodgirl

07-28-2013, 04:35 PM	#55
tical Confirmed User Join Date: Feb 2002 Location: Las Vegas Posts: 6,504	made me think of a very interesting video i saw on b12 deficiency it's pretty odd that getting thorough panels done (spectracell for instance) for vitamin / nutritional deficiencies is like pulling teeth a shame today that most any illness or condition is essentially chalked up to a deficiency in pharmaceuticals __________________ 112.020.756

07-28-2013, 07:11 PM	#60
goodgirl Confirmed User Industry Role: Join Date: Jul 2001 Location: Behind the monitor since 1988 Posts: 1,679	I would try to just have a vitamin panel done and make sure it includes all B vitamins. They know D can be low with RA and the new doc said he had only one patient with a rare B6 deficiency and that patient had similar symptoms like mine. __________________ Got Web Host providing Website Hosting since 2002.

07-29-2013, 06:39 PM	#65
Dirty D Confirmed User Join Date: May 2002 Location: Paying Webmasters Millions Since 1999 Posts: 4,044	Glad to read a positive and warm msg on GFY. Give Tanya a hug for us. Glad you guys are doing well. You both deserve it! __________________ Dirty D - ICQ #1326843 - $1 Million Dollars of Bonus Money - 8,000+ FHG! Glory Hole Girlz - Crack Whore Confessions - Tampa Bukkake - Slut Wife Training - Fuck a Fan Electricity Play - Porn Video Drive - Theater Sluts - Skunk Riley - Ukraine Amateurs - Strapon Sessions

07-30-2013, 01:45 AM	#67
mikesinner Confirmed User Industry Role: Join Date: Nov 2005 Posts: 5,646	Won't be too long before a full genetic test can be done cheaply for everyone. By the time it comes around in 5-10 years they will have figured out what most genes do. They already know the function of a lot of them. __________________ My Best Sponsors MPl l Camsl CUMSHOTSl LESBIANSl FETISHl BJ RACESl TEEN BJl BSDMl VODl USE YOUR PC TO CURE CANCER

07-30-2013, 09:47 AM	#71
Imortyl Pussycat Confirmed User Join Date: Apr 2006 Location: Cali Posts: 5,449	this is amazing news, i'm so happy for Tanya and for you doll! I can't wait to see her and give her a big hug __________________ Julie Larson julie {at} juicyads.com skype: imortylpussycat Buy & Sell Ads on The Most Sexy Advertising Network on the Planet available ad spots \| sign up now

07-28-2013, 03:40 PM	#51
SilentKnight Megan Fox's fluffer Industry Role: Join Date: Oct 2005 Location: shooting pool in Elysium Posts: 24,818	baddog - just sittin' here talking with my wife in the background over this thread. Something she says you and GG should be aware of and take into consideration: She says that sometimes vitamin supplements such as the B7 can mask/manipulate the effects of RA while the internal joint damage is still being done. Also, some medications (especially T & F blockers/biologic drugs and DMARDS such as methotrexate) will give a false low reading for some vitamins and minerals. Basically, even though the B7 and B12 supplements are giving her radical improvement, don't entirely rule out that the RA may still be present. Stay on top of her progress and monitor things very closely (as I'm sure you both will anyways). But that said - I really hope its simply just the B7 deficiency and what she's doing will totally eradicate the symptoms.

07-28-2013, 04:33 PM	#54
baddog So Fucking Banned Industry Role: Join Date: Apr 2001 Location: the beach, SoCal Posts: 107,089	SK: Tanya's sister has tested positive and acted reluctant to even try because she did not want to mix meds; B7 will just piss out of you if you have too much. Look at the symptoms and you will see a ton of similarities. It can not hurt her to have the vitamins. That being said, are you guys familiar with the Rheumatoid Patient Foundation? www.rheum4us.org

07-29-2013, 09:09 AM	#61
baddog So Fucking Banned Industry Role: Join Date: Apr 2001 Location: the beach, SoCal Posts: 107,089	Bump for the Monday crowd

07-29-2013, 09:21 AM	#62
seeric .......... Industry Role: Join Date: Aug 2004 Location: .......... Posts: 41,917	I'm not going to get all conspiracy nut here, but I can tell you based on a few real world interactions with the medical system in the USA, that it's not about making people better. People that are not sick don't pay you money if you're a medical business. There is no $ in cures. My significant other works in a naturopath clinic, and on a weekly, monthly, and yearly basis, they CURE diabetes. Not treat it with insulin to keep you coming back addicted to the insulin. They CURE it. Knock it out, it's gone, done! Never to deal with it again. There are so many things wrong with our countries food, the marketing of that food, and the processing of that food, that I wouldn't know where to start. That coupled with the health care system creates the necessary catalyst for those companies in the medical space to stay rich, while you stay sick! People need to stop believing the HYPE that your doctor cares about you, and that the system is designed to benefit you. It is not. Get out there. Turn over your own rocks. Educate yourself like GG and BD did, and take your lives back. I love reading stuff like this.

07-29-2013, 03:14 PM	#63
SilentKnight Megan Fox's fluffer Industry Role: Join Date: Oct 2005 Location: shooting pool in Elysium Posts: 24,818	Bump for the cause.

07-29-2013, 05:17 PM	#64
baddog So Fucking Banned Industry Role: Join Date: Apr 2001 Location: the beach, SoCal Posts: 107,089	http://ireport.cnn.com/docs/DOC-1012971

07-30-2013, 09:15 AM	#69
rhon23 Rebel Girl Industry Role: Join Date: Jun 2003 Location: The Island Of Misfit Toys Posts: 3,264	I have a form of anemia due to low b12. I give myself injections once a month and will have to for the rest of my life. It's amazing what the lack of b12 does to your body and mind. The injections have changed my entire life.

07-30-2013, 10:07 AM	#73
media Confirmed Moneymaker Industry Role: Join Date: Apr 2002 Location: Eugene, OR It's Like Jail, Only with Trees! Posts: 9,852	Good for you both Lloyd! I read this when you initially posted it on FB.. I'm going to have my girl ask her doc for a vitamin/mineral test to see if her levels are out of wack.. the docs scratch their heads every time and say it's either Fibromyalgia or it's all in your head, or it's inter muscular pain, blah blah.. she's gone to multiple docs, spine experts, pain experts, MRI's.. no one can pinpoint shit, or their not willing to say what it could be for logistical reasons or politics of HMO/PPO's.. I'm sure people overlook the most basic of things to try and diagnose the most complicated of things, but fail miserably most of the time.. Glad Tanya is feeling better and enjoying life more __________________ I'm here for the violence!

08-05-2013, 04:49 PM	#77
baddog So Fucking Banned Industry Role: Join Date: Apr 2001 Location: the beach, SoCal Posts: 107,089	Since there was a bump (or two) I might as well provide an update. GG has completely discontinued using any of the drugs she used to rely on daily. Has never felt better, is constantly amazed at what she can now do. We are learning more, but I will tell you this, no matter what you were "diagnosed" with, you owe it to yourself to get a vitamin and mineral test done. If nothing else, start powering down B7, your body may not be getting it through normal means.

08-05-2013, 07:40 PM	#78
johnnyloadproductions Account Shutdown Industry Role: Join Date: Oct 2008 Location: Gone Posts: 3,611	I suffered from rapid cycling manic depression, I believe it was partly induced from a very hard hit from a soft ball (gave me a concussion). I went on lithium for 18 months, though I probably only needed for 6 or so, and was completely cured. It's been that way for 7 years now, no meds at all. Lithium acts through several different channels and mechanisms, but after some reading I believe it reset my brain and I was fine after that. I never ever want to experience what I did back then, hardly anyone can imagine how painful it got for me. The hardest part of psychotropic drugs is the lag of 1-4 weeks for effects to become apparent, if then. The body is what moves you around but your mind is the ultimate governor and determine how and where you end up. That's why most homeless people are either very ill or crazy.

08-06-2013, 05:49 AM	#79
DraX Confirmed User Industry Role: Join Date: Oct 2002 Location: In wonderland.. Posts: 7,147	Great story and happy she's found a completely new road in life. She's worth it. I think doctors are way too arrogant towards vitamines and supplements and I have seen it upfront a couple of times. But I also believe doctors in the U.S. are more open for such means as treatment. Good luck in life goodgirl __________________ Deposit Today With BTC - Play With Bitcoins