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Originally Posted by SilentKnight
baddog - just sittin' here talking with my wife in the background over this thread.
Something she says you and GG should be aware of and take into consideration:
She says that sometimes vitamin supplements such as the B7 can mask/manipulate the effects of RA while the internal joint damage is still being done. Also, some medications (especially T & F blockers/biologic drugs and DMARDS such as methotrexate) will give a false low reading for some vitamins and minerals.
Basically, even though the B7 and B12 supplements are giving her radical improvement, don't entirely rule out that the RA may still be present. Stay on top of her progress and monitor things very closely (as I'm sure you both will anyways).
But that said - I really hope its simply just the B7 deficiency and what she's doing will totally eradicate the symptoms.
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I understand what she is saying, my mother had severe Rheumatoid Arthritis and died of a complication called Felty's Syndrome. My older sister has damage from it and has done well with the treatments. I struggled more with similar symptoms plus many more and in 8 years of x-rays, MRI's and cat scans no damage other then in the neck was found. And the RA docs say RA does not hit the neck.
I had been found to have low vitamin D over a year ago and started treatment. They do know with biotinidase deficiency causes issues absorbing other B vitamins, fats, carbohydrates and proteins. I do not believe I have RA after this past week of improvement and seeing many different RA doctors, family doctor and neurologist.
I will be writing more as I find out more and my treatment changes. From symptoms that my mother, older sister, younger sister and myself. I believe RA and biotinidase runs in my family. I think my mom had both, my older sister has RA and younger has biotinidase. But that is just going by symptoms that were different between us.