My typical day.
 

Each night I try to be in bed by seven and hopefully asleep by eleven. I know that sounds like a god awful amount of time and during those hours I try to make sure they are productive. I read, work, write out lists, and then veg out a little bit. If I am lucky the muscle spasms will not be so bad as to keep me awake longer than normal though sometimes they are bad enough that even with Valium I will not get to sleep until three maybe four am.

I know the alarm will be going off by eight am and that I must be up no latter than eight forty five. Going to sleep I have one thing that comforts me some. That when I do wake up about half of the time I do not awake with my usually faithful companion that is pain. On those good days I am able to wake up ten and maybe sometimes thirty minutes before the pain does. I also know if I move much during those lucky ten to thirty minutes the pain stirs to life to welcome me to yet another day.

It will then take me ten minutes to get dressed and into my chair. During this time is when my near life long friend pain wakes up its side kick known as muscle spasms. Thankfully the spasms are not consistent often and generally come in spurts. Most are not that bad though at least once a day I will get one or more than is akin to getting gut punched without warning. I know I could always take pain pills and or muscle relaxers and I do have that option yet I do not. As I would rather go through each day in a great deal of pain and discomfort than be under a cloud of fuzziness.

I then grab a quick bite to eat which is important as I am prone to anemia so staying on top of this is fairly important. After breakfast I clean up and then begin work. I will answer emails, return calls, check in on sites, go through my current to do list, and try my best to learn something new for the day. At roughly one pm I will break for lunch and do some household chores at the same time. When required I run some errands and I typically never look forward to them as each time I have to go somewhere I must leave my chair. This causes a new round of spasms. I will try to be back at work by two pm and will continue to work until five thirty. At that time I try to be finished with what I am doing for the day.

After working I will head to the kitchen to prepare dinner. This will typically take thirty minutes to an hour and I like doing it a lot. I then will eat and motivate myself to get ready to take a shower. I really have a love hate relationship with showers. It takes a long time to get into them and out of them, it also will cause even more pain and spasms but the water feels so good. When the shower is over I will grab a few things and head to bed.

I will climb into bed and begin this whole process over again. It is my life and has been my life for the last twenty one years, almost twenty two. For the most part it is like this six out of the seven days of each week. I nearly always take one day off to spend as I please.

I would never wish my life on someone else nor would I exchange it with anyone else. I am not sure they would appreciate those ten to thirty minutes as much as I do.

well sounds you are content and that my friend is all that matters

i hear ya sorta....serious note i was smashed by a trash dumpster and my shit convulses like aliens are working their way outta my legs....sad and true at the same time let your imaginations run wild!