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Old 03-20-2008, 02:59 AM   #1
DjiXas
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Harlequin Disease (Pics)

http://images.google.com/images?num=...-8&sa=N&tab=wi

Watched about this one on telly yesterday

Strange shit happens in this world... Some of those looks like ... I don't know
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Old 03-20-2008, 03:07 AM   #2
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Old 03-20-2008, 03:09 AM   #3
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What a horrible disease. I saw a pic on there of a child that was around 5'ish. I wonder what the life expectancy is if you make it back the toddler stage.
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Old 03-20-2008, 03:13 AM   #4
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I wish I hadnt clicked that.
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Old 03-20-2008, 03:13 AM   #5
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Interesting how the first picture on the google images appeared on what claims to be a humor site.
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Old 03-20-2008, 03:21 AM   #6
DjiXas
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Quote:
Originally Posted by sherm View Post
What a horrible disease. I saw a pic on there of a child that was around 5'ish. I wonder what the life expectancy is if you make it back the toddler stage.
Yeah, that sucks. Saw one girl with this disease yesterday, she's 18y old, has to "wash" her skin like 2 - 3 times per day (~2h each time), uses ~10 kilos of cream per week to supply her skin...
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Old 03-20-2008, 04:17 AM   #7
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There is a guy who is an adult sufferer now, he is actually an athelete.

Just goes to show..

"In San Diego a young man, Ryan González, has this condition and has not only survived to adulthood but also thrives as a triathlete. His treatment involves dosing with isotretinoin (also known as Accutane), the constant use of lotions to keep the skin supple, and use of a very high-caloric diet of at least 7,500 calories a day, including a nightly feeding tube of pure protein due to the constant shedding of his skin, which is believed to shed ten to forty times faster than unaffected skin.

Ryan takes part in the triathlon for athletes with disabilities and swims regularly."

Excerpt from wikipedia.
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Old 03-20-2008, 04:25 AM   #8
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My girl friend whos a nurse made me watch that program too really sad feel bad for those poor kids.
The shit they have to go through and they're still going slowly blind and deaf.
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Old 03-20-2008, 05:28 AM   #9
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damn... it looks unreal!
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Old 03-20-2008, 05:48 AM   #10
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damn......
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Old 03-20-2008, 06:24 AM   #11
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having acne is bad, but this... damn
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Old 03-20-2008, 06:26 AM   #12
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having acne is bad, but this... damn
um, yeah
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Old 03-20-2008, 07:21 AM   #13
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Old 03-20-2008, 07:28 AM   #14
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horrible that any child should suffer like that.
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Old 03-20-2008, 07:32 PM   #15
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Wow.. just horrible
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Old 03-20-2008, 07:34 PM   #16
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that is so upsetting
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Old 03-20-2008, 08:17 PM   #17
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Wow!!!!!!!!!!!!!
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