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I'm gonna read up on this disease, never heard of it before



Sorry to hear about your loss Kurtis, be strong

i wish you all the best for your cause!

I'm sorry for your loss Kurtis...our prayers are with you.

I'm so sorry for your loss, Kurtis. :(

Thank you for your support everyone

My prayers are with you Kurtis

Kurtis if you want to get the word out about this horrible disease, I know it may be early, but if you(or someone) could put a tribute video to your son on youtube.com, it is an excellent way to emotionally stir people to raise awareness and donations to research into curing it. From what I read, accurate and early diagnosis is the key to beating this.

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Are are actually making a slide show with picture and video.

Kurtis- I am so sorry for your loss. It is a horrible thing to lose a child so young. It reminds us all how fragile life really is. We are sending nothing but positive thoughts to you and yours during this difficult time and still praying for a cure!