Do you have a chronic disease or know someone that does?

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  • baddog
    So Fucking Banned
    • Apr 2001
    • 107089

    #1

    Do you have a chronic disease or know someone that does?

    If you are suffering with a chronic disease or knows someone who is, this may be the most important thread you ever read. A little back story.

    9 years ago goodgirl was diagnosed with Rheumatoid Arthritis; it is a very fucked up disease. Those of you that have met her probably noticed how quiet she was. There was too much pain for her to concentrate on a conversation. She could not stand around and talk because she had to keep moving to ease the pain in her feet. Two months ago her sister's kid had a baby. These days they test newborns for genetic deficiencies, they discovered a mutated gene and they did not know what side of the family it came from. The mutation can cause a dangerous vitamin deficiency that can have serious effects. goodgirl decided to get a B7 test run on her. After two months and two tests they determined that she had a profound deficiency, otherwise known as Biotinidase Deficiency.

    So little is known about the disease that her primary care physician did not know what to do, but she had a vacation scheduled, so she left town. goodgirl found a clinic that would give her a B7/B12 injection, then went to the store and bought some B7 capsules. That was Saturday the 20th of July. On Sunday she stopped taking the multitude of pills that she has taken every day for the last 9 years. It has been a week now and I can not believe the difference. It is like I am with someone new.

    There is far too much information for me to deliver in one post or article on my blog, so there will be a series written. I advise anyone that has been diagnosed with any disease to get a vitamin and mineral blood test done immediately. It could change or save your life. It did hers.

    If you want to follow the story or pass it along, you can find it at http://www.gotbaddog.com/adult-biotinidase-deficiency/


  • Harmon
    ( ͡ʘ╭͜ʖ╮͡ʘ)
    • Mar 2004
    • 20012

    #2
    Fucking kudos to you Lloyd. You and your lady are doing God's work.
    [email protected]

    Comment

    • CT-Content
      So Fucking Intelligent
      • Aug 2012
      • 434

      #3
      Glad she's feeling better after stopping the medication. Dr.'s like to pump ya full of shit like a guinea pig. The VA Dr.'s did the same to me - not for what goodgirl has, it's for something else. Hope things go smooth as silk for her !

      Comment

      • - Jesus Christ -
        Confirmed User
        • Mar 2003
        • 7197

        #4
        Its amazing how many times we find simple solutions to problems that we think are complicated.

        Thanks for the story and advice.

        Amen

        Comment

        • Dankasaur
          So Fucking Fossilized
          • Sep 2011
          • 1432

          #5
          Awesome story, and congrats GoodGirl.

          Comment

          • VikingMan
            Exploiting human weakness
            • Jan 2008
            • 6862

            #6
            Nice!!!, also fresh Royal Jelly does wonders. Most likely she benefited most from the injections rather than the pills.
            Last edited by VikingMan; 07-28-2013, 09:21 AM.

            Comment

            • L-Pink
              working on my tan
              • Mar 2005
              • 39151

              #7
              Pain free and so simple at the same time. How wonderful for her.

              Comment

              • baddog
                So Fucking Banned
                • Apr 2001
                • 107089

                #8
                Originally posted by VikingMan
                Nice!!!, also fresh Royal Jelly does wonders. Most likely she benefited most from the injections rather than the pills.
                Biotinidase is caused by the body missing an enzyme that allows proteins from separating from B7 which prevented her body from being able to properly absorb fats, proteins, carbs and B7 (and other B vitamins) properly. In other words, her body can not pull B7 from natural sources, like all the juicing she has been doing.

                As far as the B7 shot; it was mixed with B12 and there is only like 1 mg in the injection; she has been taking 50 mgs a day; it is the pills for sure.

                Comment

                • brassmonkey
                  Pay It Forward
                  • Sep 2005
                  • 77385

                  #9
                  Originally posted by Harmon
                  Fucking kudos to you Lloyd. You and your lady are doing God's work.
                  TRUMP 2026 KEKAW!!! - The Laken Riley Act Is Law!
                  DACA ENDED - SUPPORT AZ HCR 2060 52R - email: brassballz-at-techie.com

                  Comment

                  • 96ukssob
                    So Fucking Banananananas
                    • Mar 2003
                    • 12991

                    #10
                    That's awesome, glad to hear she's doing better and pain free. Can't imagine what she has been going through but wish her the best!

                    Where did she get this test done? I'm guessing at an endorchronolgists office?
                    Email: Clicky on Me

                    Comment

                    • NaughtyRob
                      Two fresh affiliate progs
                      • Nov 2004
                      • 29602

                      #11
                      Wow. Well, my sister has MS, afraid it won't be that wasy for her. :-(
                      [email protected]
                      Skype: 17026955414
                      Vacares Web Hosting - Protect Your Ass with Included Daily Backups

                      Comment

                      • Itchy
                        Datetronix.com
                        • Jan 2001
                        • 6525

                        #12
                        This is awesome news to hear !!


                        ICQ: 2588560
                        Skype: Pornocop

                        Comment

                        • Harmon
                          ( ͡ʘ╭͜ʖ╮͡ʘ)
                          • Mar 2004
                          • 20012

                          #13
                          Originally posted by brassmonkey
                          Something funny about sick children?
                          [email protected]

                          Comment

                          • brassmonkey
                            Pay It Forward
                            • Sep 2005
                            • 77385

                            #14
                            Originally posted by Harmon
                            Something funny about sick children?
                            what??? we don't work for god more of a warmer climate
                            TRUMP 2026 KEKAW!!! - The Laken Riley Act Is Law!
                            DACA ENDED - SUPPORT AZ HCR 2060 52R - email: brassballz-at-techie.com

                            Comment

                            • SilentKnight
                              Megan Fox's fluffer
                              • Oct 2005
                              • 24812

                              #15
                              My wife has suffered from RA all her life. Doctors told her when she was a child that she'd never walk or lead a normal life.

                              She proved them wrong over the years with sheer determination and force of will.

                              But these days she's been going through a littany of treatments to keep the arthritis away from her organs. From methotrexate to plaquinil infusions...in the next few weeks she starts infusion treatments with remicaid. The cost is staggering - over $4k per infusion and her program starts with several infusions in rapid succession...over $10k to get things underway.

                              We're hoping the side effects aren't worse than the RA progression.

                              Baddog - good to hear about Goodgirl's improvements. RA is a brutal disease - one we both live with on a daily basis.

                              Comment

                              • Harmon
                                ( ͡ʘ╭͜ʖ╮͡ʘ)
                                • Mar 2004
                                • 20012

                                #16
                                Originally posted by brassmonkey
                                what??? we don't work for god more of a warmer climate
                                Go pay your fake $1500 electric bill, with your fake checkbook, Toby
                                [email protected]

                                Comment

                                • baddog
                                  So Fucking Banned
                                  • Apr 2001
                                  • 107089

                                  #17
                                  Originally posted by bossku69
                                  That's awesome, glad to hear she's doing better and pain free. Can't imagine what she has been going through but wish her the best!

                                  Where did she get this test done? I'm guessing at an endorchronolgists office?
                                  Your primary physician should be able to do it; we went to a naturopathic doctor for the last test she had Thursday.

                                  Originally posted by NaughtyRob
                                  Wow. Well, my sister has MS, afraid it won't be that wasy for her. :-(
                                  The thing is Rob, we thought goodgirl had something different than what she was diagnosed with; a lot of symptoms that seemed to coincide with RA or Crohn's are very similar to a B7 deficiency. There is no way I would not spend the $200 (or less) to find out. Even if it does not cure MS, it could alleviate some symptoms. Like I said, I have far too much info to write in one post, and I am still learning; but a vitamin and mineral test is something Obama should force insurance companies to do if they are going to force people to get health insurance.

                                  Comment

                                  • dyna mo
                                    just a fucking jerk
                                    • Dec 2008
                                    • 68184

                                    #18
                                    pretty much. good info, bd!

                                    i've been getting my b12 via vitamin IV in combination with hydrogen pyroxide. it takes about 45 minutes each, i am very happy with the results. i then hop in the hyperbaric chamber for an hour to jam all those nutrients into my system.

                                    i also picked up the guitar to aerobicize the fingers in my hands.

                                    Comment

                                    • baddog
                                      So Fucking Banned
                                      • Apr 2001
                                      • 107089

                                      #19
                                      Originally posted by SilentKnight
                                      My wife has suffered from RA all her life. Doctors told her when she was a child that she'd never walk or lead a normal life.

                                      She proved them wrong over the years with sheer determination and force of will.

                                      But these days she's been going through a littany of treatments to keep the arthritis away from her organs. From methotrexate to plaquinil infusions...in the next few weeks she starts infusion treatments with remicaid. The cost is staggering - over $4k per infusion and her program starts with several infusions in rapid succession...over $10k to get things underway.

                                      We're hoping the side effects aren't worse than the RA progression.

                                      Baddog - good to hear about Goodgirl's improvements. RA is a brutal disease - one we both live with on a daily basis.
                                      Please do yourself a favor and get a vitamin deficiency test done, she has nothing to lose and everything to gain. goodgirl has had so many fucked up drugs put in her system and the side effects of what your wife is about to endure are pretty bad; especially when it could be something as simple as a vitamin deficiency.

                                      Comment

                                      • baddog
                                        So Fucking Banned
                                        • Apr 2001
                                        • 107089

                                        #20
                                        Originally posted by dyna mo
                                        pretty much. good info, bd!

                                        i've been getting my b12 via vitamin IV in combination with hydrogen pyroxide. it takes about 45 minutes each, i am very happy with the results. i then hop in the hyperbaric chamber for an hour to jam all those nutrients into my system.

                                        i also picked up the guitar to aerobicize the fingers in my hands.
                                        Remember, with Biotinidase, the enzyme prevents the body from absorbing what it needs. B12 helped, but the B7 deficiency prevented it from truly getting in her system. The juicing she has been doing for the past 18 months probably saved her life, but it could not give her all the benefits it could. Now she actually feels the benefits as she drinks her juice. She cannot believe the difference. She bounces off the walls and is constantly smiling and shaking her head in amazement.

                                        Comment

                                        • SilentKnight
                                          Megan Fox's fluffer
                                          • Oct 2005
                                          • 24812

                                          #21
                                          Originally posted by baddog
                                          Please do yourself a favor and get a vitamin deficiency test done, she has nothing to lose and everything to gain. goodgirl has had so many fucked up drugs put in her system and the side effects of what your wife is about to endure are pretty bad; especially when it could be something as simple as a vitamin deficiency.
                                          She actually gets the vitamin deficiency tests done on a fairly regular basis - and takes B12 supplemental shots. Unlike Goodgirl - its definitely RA and not a misdiagnosis of vitamin deficiency. She's had it all her life. She's currently a patient of one of the leading RA doctors in Canada - we're at least a bit fortunate in that respect.

                                          I'm genuinely happy for you guys - and although the original diagnosis was obviously wrong...glad it was discovered to be a misdiagnosis with a comparatively easy fix.

                                          Comment

                                          • Grapesoda
                                            So Fucking Banned
                                            • Jul 2003
                                            • 46234

                                            #22
                                            Originally posted by baddog
                                            If you are suffering with a chronic disease or knows someone who is, this may be the most important thread you ever read. A little back story.

                                            9 years ago goodgirl was diagnosed with Rheumatoid Arthritis; it is a very fucked up disease. Those of you that have met her probably noticed how quiet she was. There was too much pain for her to concentrate on a conversation. She could not stand around and talk because she had to keep moving to ease the pain in her feet. Two months ago her sister's kid had a baby. These days they test newborns for genetic deficiencies, they discovered a mutated gene and they did not know what side of the family it came from. The mutation can cause a dangerous vitamin deficiency that can have serious effects. goodgirl decided to get a B7 test run on her. After two months and two tests they determined that she had a profound deficiency, otherwise known as Biotinidase Deficiency.

                                            So little is known about the disease that her primary care physician did not know what to do, but she had a vacation scheduled, so she left town. goodgirl found a clinic that would give her a B7/B12 injection, then went to the store and bought some B7 capsules. That was Saturday the 20th of July. On Sunday she stopped taking the multitude of pills that she has taken every day for the last 9 years. It has been a week now and I can not believe the difference. It is like I am with someone new.

                                            There is far too much information for me to deliver in one post or article on my blog, so there will be a series written. I advise anyone that has been diagnosed with any disease to get a vitamin and mineral blood test done immediately. It could change or save your life. It did hers.

                                            If you want to follow the story or pass it along, you can find it at http://www.gotbaddog.com/adult-biotinidase-deficiency/


                                            oddly enough cherry juice helps too... started drinking the stuff, very concentrated... help my arthritis..

                                            Comment

                                            • paffie
                                              Confirmed User
                                              • Mar 2013
                                              • 116

                                              #23
                                              my wife has fibromyalgia... She had all kind of bloodworks, allergytests, x-rays,... done over the years. They found a multitude of things wrong with her, but none of those things explain why she has so much pain...

                                              The only thing she can do is to take NSAIDs, and combine them with morphine. It's the only thing that keeps her on her feet...
                                              Need a VPS? I use Ramnode, great uptime, friendly support and only $62/year (after their lifelong coupon) for an openVZ VPS => [email protected], 512Mb ram, 512 Mb swap, 120 Gb SSD, 1Gbps port, 2 Tb bandwith, 1 IPv4, 16 IPv6, weekly backups

                                              Comment

                                              • Got Domains?
                                                So Fucking Spammed WTF!
                                                • Apr 2013
                                                • 248

                                                #24
                                                i have ashma

                                                Comment

                                                • SilentKnight
                                                  Megan Fox's fluffer
                                                  • Oct 2005
                                                  • 24812

                                                  #25
                                                  Originally posted by Grapesoda
                                                  oddly enough cherry juice helps too... started drinking the stuff, very concentrated... help my arthritis..
                                                  Cherry juice concentrate works on mild forms of garden-variety arthritis - but not rheumatoid arthritis.

                                                  Comment

                                                  • kane
                                                    Too lazy to set a custom title
                                                    • Aug 2001
                                                    • 20684

                                                    #26
                                                    I'm happy to hear she is doing so much better.
                                                    Last edited by kane; 07-28-2013, 11:48 AM.

                                                    Comment

                                                    • azpoindexter
                                                      Confirmed User
                                                      • Apr 2013
                                                      • 163

                                                      #27
                                                      Thats great to hear and awesome that you are sharing the info.. My mom has Huntington's disease and b vitamin shots help with her symptoms. Its not curable at the moment but every little bit helps.

                                                      Comment

                                                      • baddog
                                                        So Fucking Banned
                                                        • Apr 2001
                                                        • 107089

                                                        #28
                                                        Originally posted by Grapesoda
                                                        oddly enough cherry juice helps too... started drinking the stuff, very concentrated... help my arthritis..
                                                        Again, her disease does not allow the proteins to separate so the B vitamins can be properly absorbed.

                                                        Originally posted by paffie
                                                        my wife has fibromyalgia... She had all kind of bloodworks, allergytests, x-rays,... done over the years. They found a multitude of things wrong with her, but none of those things explain why she has so much pain...

                                                        The only thing she can do is to take NSAIDs, and combine them with morphine. It's the only thing that keeps her on her feet...
                                                        Fibromyalgia is one of those diseases that have symptoms the same as a Biotinidase Deficiency; goodgirl was having nerve conduction studies done a couple weeks ago because they thought she might have fibromyalgia. Turns out, it was a vitamin deficiency. Believe me, goodgirl was taking a ton of shit to deal with the pain and none of it worked all that well; I strongly advise your wife have a vitamin deficiency test done, at least test B6 and B7 levels if nothing else.

                                                        We just had a friend contact us that she had a full vitamin blood test done a year ago, oddly enough, B7 was not tested. Do yourself a favor and check.

                                                        Comment

                                                        • wehateporn
                                                          Promoting Debate on GFY
                                                          • Apr 2007
                                                          • 27176

                                                          #29
                                                          I'm glad she's getting better! Rheumatoid Arthritis can be caused by vaccines

                                                          Comment

                                                          • baddog
                                                            So Fucking Banned
                                                            • Apr 2001
                                                            • 107089

                                                            #30
                                                            Originally posted by wehateporn
                                                            I'm glad she's getting better! Rheumatoid Arthritis can be caused by vaccines
                                                            Save it for your weekly CT meeting.

                                                            Comment

                                                            • Mutt
                                                              Too lazy to set a custom title
                                                              • Sep 2002
                                                              • 34431

                                                              #31
                                                              My sister had fibromyalgia pretty bad - i will show her this and urge her to at least get tested for this vitamin deficiency.

                                                              Doctors are arrogant, the truth is that for the majority of serious diseases they don't have effective treatments nevermind cures and don't even know the causes of most diseases and disorders as of yet they have the attitude that they are great healers and scientists.

                                                              on the positive side, we are on the verge of a great leap forward in medicine thanks to technology, where cures not 'treatments' will be possible.
                                                              I moved my sites to Vacares Hosting. I've saved money, my hair is thicker, lost some weight too! Thanks Sly!

                                                              Comment

                                                              • baddog
                                                                So Fucking Banned
                                                                • Apr 2001
                                                                • 107089

                                                                #32
                                                                Originally posted by Mutt
                                                                My sister had fibromyalgia pretty bad - i will show her this and urge her to at least get tested for this vitamin deficiency.

                                                                Doctors are arrogant, the truth is that for the majority of serious diseases they don't have effective treatments nevermind cures and don't even know the causes of most diseases and disorders as of yet they have the attitude that they are great healers and scientists.

                                                                on the positive side, we are on the verge of a great leap forward in medicine thanks to technology, where cures not 'treatments' will be possible.
                                                                One of goodgirl's relatives was recently diagnosed with RA and was told that her insurance was not going to cover it; now she has an affordable option.

                                                                She has pretty good insurance, and while they will gladly pay thousands and thousands on drugs, they will not spend $.01 on vitamins or a doctor that doesn't deal with drugs.

                                                                Weird.

                                                                Comment

                                                                • wehateporn
                                                                  Promoting Debate on GFY
                                                                  • Apr 2007
                                                                  • 27176

                                                                  #33
                                                                  Originally posted by baddog
                                                                  Save it for your weekly CT meeting.
                                                                  This is Fact not Theory, pharma want you on their pills for life, that's how they make money, this is what the vaccine game is all about, don't believe the propaganda/marketing that goes with it, they want you sick.

                                                                  3 Suits Say Lyme Vaccine Caused Severe Arthritis

                                                                  http://www.nytimes.com/2000/06/13/sc...arthritis.html


                                                                  "Multiple scientific articles have documented that vaccinations for influenza, MMR, and HBV, to name a few, could be triggers of RA in genetically predisposed individuals."

                                                                  http://www.hindawi.com/crim/rheumatology/2012/785028/


                                                                  "The committee found that the evidence is consistent with a causal relation between the RA 27/3 rubella vaccine strain and chronic arthritis in adult women"

                                                                  http://www.ncbi.nlm.nih.gov/pubmed/1520764

                                                                  Comment

                                                                  • wehateporn
                                                                    Promoting Debate on GFY
                                                                    • Apr 2007
                                                                    • 27176

                                                                    #34
                                                                    https://www.youtube.com/watch?v=ieziJT6sHPE#t=17m56s

                                                                    Comment

                                                                    • baddog
                                                                      So Fucking Banned
                                                                      • Apr 2001
                                                                      • 107089

                                                                      #35
                                                                      Originally posted by wehateporn
                                                                      This is Fact not Theory, pharma want you on their pills for life, that's how they make money, this is what the vaccine game is all about, don't believe the propaganda/marketing that goes with it, they want you sick.

                                                                      3 Suits Say Lyme Vaccine Caused Severe Arthritis

                                                                      http://www.nytimes.com/2000/06/13/sc...arthritis.html


                                                                      "Multiple scientific articles have documented that vaccinations for influenza, MMR, and HBV, to name a few, could be triggers of RA in genetically predisposed individuals."

                                                                      http://www.hindawi.com/crim/rheumatology/2012/785028/


                                                                      "The committee found that the evidence is consistent with a causal relation between the RA 27/3 rubella vaccine strain and chronic arthritis in adult women"

                                                                      http://www.ncbi.nlm.nih.gov/pubmed/1520764
                                                                      "could be triggers" means maybe, not a fact.

                                                                      FYI: Rheumatoid Arthritis IS NOT Arthritis

                                                                      Comment

                                                                      • Mutt
                                                                        Too lazy to set a custom title
                                                                        • Sep 2002
                                                                        • 34431

                                                                        #36
                                                                        Originally posted by baddog
                                                                        If you are suffering with a chronic disease or knows someone who is, this may be the most important thread you ever read. A little back story.

                                                                        9 years ago goodgirl was diagnosed with Rheumatoid Arthritis; it is a very fucked up disease.
                                                                        Are there blood tests and scans etc that confirm that a person has Rheumatoid Arthritis? Or is it a disease like Fibromyalgia where the diagnosis is predominatly made based on the symptoms the patient describes?

                                                                        Do you think goodgirl has been misdiagnosed with RA or do you think she has RA and this biotinidase deficiency and while the vitamins are making her feel much better she still has RA?
                                                                        I moved my sites to Vacares Hosting. I've saved money, my hair is thicker, lost some weight too! Thanks Sly!

                                                                        Comment

                                                                        • SilentKnight
                                                                          Megan Fox's fluffer
                                                                          • Oct 2005
                                                                          • 24812

                                                                          #37
                                                                          Originally posted by Mutt
                                                                          My sister had fibromyalgia pretty bad - i will show her this and urge her to at least get tested for this vitamin deficiency.

                                                                          Doctors are arrogant, the truth is that for the majority of serious diseases they don't have effective treatments nevermind cures and don't even know the causes of most diseases and disorders as of yet they have the attitude that they are great healers and scientists.

                                                                          on the positive side, we are on the verge of a great leap forward in medicine thanks to technology, where cures not 'treatments' will be possible.
                                                                          Some of these treatments are incredibly cost-prohibitive, too. As mentioned above, the remicaid program my wife was just approved for is over $4000 per infusion treatment. Thankfully we have medical benefits through her company that cover almost all of it...but we're among the lucky ones.

                                                                          $4 grand - bloody hell. That's just insane.

                                                                          And the side effects can be wicked. Doctors discovered on her previous medication that it was causing 'retinal toxicity' which could potentially lead to permanent blindness. It only happens in 5% of patients on that particular drug - but thankfully they caught it early with her and we've discontinued that infusion drug.

                                                                          Great healers and scientists? Sometimes I really wonder. More like distributors for the mega pharmaceutical companies.

                                                                          Comment

                                                                          • SilentKnight
                                                                            Megan Fox's fluffer
                                                                            • Oct 2005
                                                                            • 24812

                                                                            #38
                                                                            Originally posted by Mutt
                                                                            Are there blood tests and scans etc that confirm that a person has Rheumatoid Arthritis? Or is it a disease like Fibromyalgia where the diagnosis is predominatly made based on the symptoms the patient describes?

                                                                            Do you think goodgirl has been misdiagnosed with RA or do you think she has RA and this biotinidase deficiency and while the vitamins are making her feel much better she still has RA?
                                                                            Here's a good link that pretty much spells out the steps for diagnosing RA:

                                                                            http://www.webmd.com/rheumatoid-arth.../diagnosing-ra

                                                                            Comment

                                                                            • baddog
                                                                              So Fucking Banned
                                                                              • Apr 2001
                                                                              • 107089

                                                                              #39
                                                                              Originally posted by Mutt
                                                                              Are there blood tests and scans etc that confirm that a person has Rheumatoid Arthritis? Or is it a disease like Fibromyalgia where the diagnosis is predominatly made based on the symptoms the patient describes?

                                                                              Do you think goodgirl has been misdiagnosed with RA or do you think she has RA and this biotinidase deficiency and while the vitamins are making her feel much better she still has RA?
                                                                              If you get bored, or know someone that is in a relationship with someone that has RA, you can read my observations at http://www.gotbaddog.com/category/rad-caregiver/

                                                                              The fact is, there are tests that can diagnose RA, but they are relatively new and who knows how accurate they are? The thing is goodgirl (Tanya) had been tested for 9 years and they always came up negative for RA; however, she displayed the symptoms and since her mother and older sister had both been diagnosed (the sister tested positive for RA), her doctor assumed that was her problem too. $500,000 later, we learn that it may have been a vitamin deficiency all along. It makes us wonder, did her mother die needlessly? Was her sister in the hospital for the past two weeks because of complications brought on by this deficiency? Hard to say, but you can be sure, we are not done exploring and educating.

                                                                              Comment

                                                                              • digitalfantasies
                                                                                Confirmed User
                                                                                • Sep 2010
                                                                                • 2755

                                                                                #40
                                                                                good read, stories like this make a boring day beautiful, I am happy for you and her

                                                                                Comment

                                                                                • Sunny Day
                                                                                  Confirmed User
                                                                                  • Dec 2010
                                                                                  • 1406

                                                                                  #41
                                                                                  Hope it works

                                                                                  Baddog,

                                                                                  I hope it works and is a long term solution. Having RA for 30+ years, I've tried various remedies. Seems they work for awhile, then quit.
                                                                                  I'll look into this more and possibly give it a try.

                                                                                  Thanks

                                                                                  Comment

                                                                                  • Mutt
                                                                                    Too lazy to set a custom title
                                                                                    • Sep 2002
                                                                                    • 34431

                                                                                    #42
                                                                                    How is the diagnosis confirmed?

                                                                                    The diagnosis of biotinidase deficiency can be confirmed by testing a blood sample to determine the biotinidase enzyme activity level. Genetic testing to look for mutations in the BTD gene may also assist in confirming the diagnosis. Diagnostic testing is arranged by specialists at your regional treatment centre.

                                                                                    Has goodgirl had the blood test for biotinidase enzyme activity yet?

                                                                                    This is a genetic disorder that is screened for at birth but the symptoms can show up later in life.
                                                                                    I moved my sites to Vacares Hosting. I've saved money, my hair is thicker, lost some weight too! Thanks Sly!

                                                                                    Comment

                                                                                    • alias
                                                                                      aliasx
                                                                                      • Apr 2001
                                                                                      • 19010

                                                                                      #43
                                                                                      Originally posted by baddog
                                                                                      I advise anyone that has been diagnosed with any disease to get a vitamin and mineral blood test done immediately.
                                                                                      Solid advice, nice to hear GG is feeling better.
                                                                                      https://porncorporation.com

                                                                                      Comment

                                                                                      • Mutt
                                                                                        Too lazy to set a custom title
                                                                                        • Sep 2002
                                                                                        • 34431

                                                                                        #44
                                                                                        Originally posted by SilentKnight
                                                                                        Here's a good link that pretty much spells out the steps for diagnosing RA:

                                                                                        http://www.webmd.com/rheumatoid-arth.../diagnosing-ra
                                                                                        Like many diseases the diagnosis is made from symptoms/observations. And I bet there is no known cause for RA, just a bunch of theories that haven't been confirmed.

                                                                                        My dad died of colon cancer, all they had for him after surgery didn't stop it is a drug that is from the 1950's or 60's that can add a little time to somebody's life, at most 2 years. Occassionally I google to see if there have been advancements since he died and there's nothing really, same dismal prognosis for people. Their big advancement is early detection by getting people screened and scoped regularly - which is smart but come on, that's no advancement.

                                                                                        If the world of technology moved at the same pace medical science does we'd be lucky to be online with IBM286 computers and 24 baud modems and cellphones the size of shoeboxes.
                                                                                        I moved my sites to Vacares Hosting. I've saved money, my hair is thicker, lost some weight too! Thanks Sly!

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                                                                                        • baddog
                                                                                          So Fucking Banned
                                                                                          • Apr 2001
                                                                                          • 107089

                                                                                          #45
                                                                                          Originally posted by Mutt
                                                                                          How is the diagnosis confirmed?

                                                                                          The diagnosis of biotinidase deficiency can be confirmed by testing a blood sample to determine the biotinidase enzyme activity level. Genetic testing to look for mutations in the BTD gene may also assist in confirming the diagnosis. Diagnostic testing is arranged by specialists at your regional treatment centre.

                                                                                          Has goodgirl had the blood test for biotinidase enzyme activity yet?

                                                                                          This is a genetic disorder that is screened for at birth but the symptoms can show up later in life.
                                                                                          We are seeking a place to have a gene test done now. I am hoping my connections at 23andme can help. Will call them tomorrow.

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                                                                                          • baddog
                                                                                            So Fucking Banned
                                                                                            • Apr 2001
                                                                                            • 107089

                                                                                            #46
                                                                                            You can read Tanya's version of the past week at http://www.tanyamartin.com/profound-...se-deficiency/

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                                                                                            • SilentKnight
                                                                                              Megan Fox's fluffer
                                                                                              • Oct 2005
                                                                                              • 24812

                                                                                              #47
                                                                                              Originally posted by Mutt
                                                                                              Like many diseases the diagnosis is made from symptoms/observations. And I bet there is no known cause for RA, just a bunch of theories that haven't been confirmed.
                                                                                              Pretty much, that's it, unfortunately. In my wife's case, her symptoms are quite obvious (these days) with the fluid buildup and joint inflammation and degeneration. To watch the pain she's in when she walks just breaks my heart. But her determination to not let it get the best of her just blows my mind and leaves me in awe of her on a daily basis. Lesser people would've thrown in the towel and ended up bed-ridden.

                                                                                              Originally posted by Mutt
                                                                                              My dad died of colon cancer, all they had for him after surgery didn't stop it is a drug that is from the 1950's or 60's that can add a little time to somebody's life, at most 2 years. Occassionally I google to see if there have been advancements since he died and there's nothing really, same dismal prognosis for people. Their big advancement is early detection by getting people screened and scoped regularly - which is smart but come on, that's no advancement.
                                                                                              I read and hear stories like that all the time - and can't help but give thought to the theory that cures aren't profitable so why bother researching advancements. The medical community would vehemently deny that, of course.

                                                                                              Originally posted by Mutt
                                                                                              If the world of technology moved at the same pace medical science does we'd be lucky to be online with IBM286 computers and 24 baud modems and cellphones the size of shoeboxes.
                                                                                              Fully agreed.

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                                                                                              • Tom_PM
                                                                                                Porn Meister
                                                                                                • Feb 2005
                                                                                                • 16443

                                                                                                #48
                                                                                                Just skimmed a lot of the thread but I'm glad to hear she's doing well with the B vitamins. It's one of those deals where modern medicine often is great at treating only symptoms, but when you figure it out it's as if it was a no-brainer the whole time.
                                                                                                43-922-863 Shut up and play your guitar.

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                                                                                                • Phoenix
                                                                                                  BACON BACON BACON
                                                                                                  • Nov 2002
                                                                                                  • 35475

                                                                                                  #49
                                                                                                  very cool stuff. glad she is feeling better
                                                                                                  Telegram PhoenixBrad
                                                                                                  https://quantads.io

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                                                                                                  • Mutt
                                                                                                    Too lazy to set a custom title
                                                                                                    • Sep 2002
                                                                                                    • 34431

                                                                                                    #50
                                                                                                    Anyway this is great for Tanya because she's got this deficiency - it's a rare defect so for the vast majority of people with RA this won't help. But definitely worth getting the word out because while it's rare, even .05% of RA and fibromyalgia sufferers adds up to thousands of people worldwide who might be helped greatly.
                                                                                                    I moved my sites to Vacares Hosting. I've saved money, my hair is thicker, lost some weight too! Thanks Sly!

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