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My first husband died of a glioblastoma in 1990. He had been diagnosed in 1984 and lived longer than any of the others in the study he was in. He lost his sence of taste and smell after the first resection and developed a tremendous sence of humor.
My prayers are with you. Read everything you can and make the doctors talk to you in plain english and make you understand. I was notorious for " Let me just ask you one more thing.." And I talked to all of the nurses and the family members for comfort and information.
There are others here that have been through similar illnesses and can offer support or give you questions for your doctors.
Please let us know what we can do to help you and your family through this terrible time.
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